Monday, March 24, 2014

CPAP Journal, Day 152

I've had somewhat of a backslide in my health in the last month. After my last entry, I was feeling the same symptoms from before, only much stronger. Any exertion of any kind would send my heart racing. Even getting up out of a chair would leave me panting for breath. Lying down on my back would give me the sensation that something heavy was on my chest, impeding my heartbeat. In a nutshell, I was beyond worried.

I set up an appointment with a cardiologist who was referred to me through Swedish Edmonds Hospital. It turns out that Dr. McCoy, who I had seen several times recently, was actually a pulmonologist, which is a doctor who specializes in lungs.

Whoops.

In the meantime, my feet had swollen up like massive bratwursts in the interim, and even wrapping one up in a compression bandage didn't do much. So in the meantime, I went to the urgent care center here in Lynnwood. (It turns out my regular doctor's office is converting to urgent care, and the last few times I had been there were not comforting. I need a new doc.)

They did an EKG on me and listened to my heart; the PA who took a look at me told me I should go to the hospital and check myself into the ER. Immediately.

I really do NOT want to go to the ER again. Last time, I spent three days in the hospital. It sucked. So I told the PA that I would see the cardiologist, and take his advice. If he told me to go to the ER, I would do so. But in the meantime, at my request, they gave me prescriptions for the same medications I was on when I got out of the hospital last year: Metoprolol, Lisinopril and Lasix.

Those medications helped out a lot. Over the next five days, I lost twelve pounds...all through the bladder. I must have had a lot of fluid retention due to this atrial fibrillation. My feet are now back down to normal; so is my weight. A few days later, I had my appointment with Dr. Stanley. The really good news: I don't have to check into the hospital or go to the ER. The meds are working.

It turns out that the symptoms were caused by a multivitamin I had started taking recently, which had Vitamin K in it. That interacted poorly with the Warfarin I have been on since July. Pro tip: if you're taking blood thinners, avoid vitamins with a clotting agent.

So, a minor tweak of my dosage later, I am feeling a great deal better. Additionally, I finally got a new CPAP mask. I'm still not used to it; I think I need to ease into the transition from one mask to another. I better get used to the new one, though. This existing mask sometimes has a weird vibrotto created by air passing through the hole torn in the rubber. It's hard to go to sleep when it feels like your nose is getting a text message on silent mode.

I also have another appointment with Dr. Stanley the day after tomorrow. It turns out nobody bothered to tell me that I am supposed to get my blood tested monthly, now that I am on Warfarin. Who knew?

I am really looking forward to being back to my old self. When I am healthy enough, I desperately want to go hashing again with my friends, the Seattle Hash House Harriers. (We're a drinking club with a running problem.) Too bad I can't run and shouldn't drink at the moment.

But here's hoping I am off the disabled list again before my next birthday!

Monday, February 24, 2014

CPAP Journal, Day 124

It has been a long time since I posted in this journal, because very little has changed. I do sleep a lot better with my CPAP on than I do without; I went down to Vancouver to visit my folks this weekend, and had trouble sleeping without the familiar feeling and the reassuring amount of oxygen it pumps in constantly.

I can't believe it, I actually have gotten used to this device.

I do have one quibble, though. Tonight, I can't sleep. There is a little hole in the rubber of the nasal mask, and it is causing a loud whoosh of air, constantly blowing from the mask. And whoever designed this thing was insidious. This rubber is the one substance on Earth I've found that duct tape and Super Glue will not stick to. It is completely un-patchable.

So I can't repair the mask, and it's too late in the night to go buy a replacement. What does that mean? It means I get to tire myself out until I don't hear the whoosh any more, and then try to sleep. I'm going to be tired as hell at work tomorrow.

The good news is, I saw Dr. McCoy a couple of months ago, and he took a look at the readout from the data card in my CPAP. He's very happy with the results, and the time I've been spending hooked up to the machine. He's so happy, he says I don't need to see him for another three years.

This is a huge step forward for my health. It looks like the treatment I've been getting and the Warfarin I've been taking are doing the job right. Now if only the equipment wasn't designed to break down easily and be impossible to fix...